Jonathan Light

Writer. Director. Producer.

Month: September 2016

Sautéed Cardboard with A Cardboard Coulis Over a Bed of Cardboard

That’s what’s on the menu as of last night. They try to warn you about the possibility that your taste buds will be decimated, but it’s not good this round.

I can basically only taste really salty things and sriracha, and the latter makes me sick. It’s like nothing I’ve ever experienced. BUT the good news is it should be short-lived…hopefully by next week I’ll be back to my normal, eat-everything self.

Other than that, things went fine at chemo number 4 yesterday. I have an appointment with the doctor on Monday for a quarter-cycle checkup and I’ll have another PET scan next week so we’ll see just how effective it’s been. The doc is pretty sure I’m doing fine, and his optimism is contagious, so as long as this thing is going away, I’ll deal with having everything taste like a Cardboard Special with Cardboard Slaw and Cardboard Dressing on Rye Cardboard.

And besides, it just means there more for this guy to eat:

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CLIMBING METAPHOR ALERT!

I know I promised to keep these to a minimum, but climbing mountains is the perfect metaphor for anything in life, so I can’t resist…

There are sections of long climbs that have easy, gentle terrain – the climbing is not too difficult, you can move un-roped, it’s generally secure, and you feel that things are going fine.

But you also have a view of the massive headwall that looms in the distance, growing bigger and bigger as you approach…in the back of your mind, you know you’ll have to tackle that soon, and endure several days of agony. But beyond THAT is more easy, fun climbing…it’s a wonderful cycle.

Well that’s generally where I am right now. I will reach that headwall this coming Thursday, and the days after that will be a bit a’ rough, but for now the climbing is pretty easy and I’m moving well. It’s been a good couple of days in the mountains.

 

 

Nausea sucks

And not even just the thing – even the word sucks. Who came up with that word? I feel slightly nauseous and then just saying the word out loud makes me feel even more nauseous. It’s one of those words that looks and sounds EXACTLY like what it is, isn’t it?

Fun grammatical fact: the correct word to convey the state-of-being of nausea is actually “nauseated” – so I should have written “I feel nauseated.” But now I’m even more nauseated, because I just realized I’m being THAT guy. Sometimes you just gotta let these things slide.

Other than that, I’m doing well enough after my third treatment on Thursday. The last two days have been not the best – I’m fatigued and feeling really “off” – but I’m functional enough. There’s some soreness from the magical white-blood cell shot Neulasta [see our ad on the Sunday morning shows!] but that should pass soon as well. Hopefully the next 13 days will be uneventful – each day farther away from the chemo day is better, so I just have to hang on until the next one.

The nurses were very happy to see me with all my hair, but they were skeptical that it would last much longer. I explained to them that very few things on this planet can conquer my Jew-Fro, so we’ll see who wins this battle.

And, as always, if for some reason this isn’t a detailed enough update for you, please call/write/whatever. It’s been wonderful to hear from everybody, and the support and outreach has been just epic. I’m very, very grateful.

 

 

 

 

 

Mid-Cycle Respite

First of all, my neighbors – the exquisite collection of families that make up Harvard Terrace – have been delivering meals to us, unannounced and unsolicited, and I just feel they need a special mention so that whoever’s reading this knows just how wonderful people can be – and in the NJ suburbs no less.

So to everyone who was all, “how can you move out of NYC?” I ask you: would this have happened in a co-op in Brooklyn? No. They probably would have been worried that a cancer patient in their building would bring their share value down. [Zing. Unfair, I know…]

As for me, I’m actually doing surprisingly well, to the point where I feel a bit guilty for not being more sick so I can feel worthy of all this help and support. The only major side effect is being tired all the time, but I also have a two-year-old so that would happen anyway.

I do wish I was able to pick him up as much as I used to, and he is sometimes a little confused about why I can’t run around with him – but – again – this is hopefully all just temporary.

Next chemo treatment is this coming Thursday, so I have a few days of being fine before I re-enter the Post-Chemo Two-to-Three-Day Window of Gloom and Nausea. But – again – if this pattern holds, and if this is as bad as it gets for the next five months, I’ll be very happy.

As for the biggest question, of course: hair loss has been minimal, just some strands coming out in the shower every day. Nothing my Jew-fro can’t vanquish so far.

And I’ve decided that I really like writing blog posts because – unlike in screenwriting  – you don’t have to come up with a satisfying ending.

 

Post-Chemo #2

Chemo was last Thursday, and somehow, I’m really doing fine. The weekend was a bit of a struggle, but it was a busy family weekend so I probably pushed a little harder than I would have.

I feel weak and a little queasy all the time, but for the most part I’ve been very lucky. If I felt like this just because I was sick, nobody would care since it would probably be gone in a few days.  But if this is the worst it gets for the next six months, I’ll be very happy.

Although there were a few strands of hair on my pillow…………..[ominous music]. Rachel is dreading that part of it, since she only loves me for my hair, but I’ll actually feel a bit cheated if I don’t get to see what I’d look like completely bald.

Since I won’t be able to climb…

Might as well make room for the next generation.

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